Over the past year, Ken’s been trying new chemotherapies in hopes that we’d find one that would keep his Glioblastoma (brain cancer) at bay. In January, his MRI revealed new tumor growth in a totally new area which did not bode well and we switched chemotherapies again. Ken’s expressive language, memory and ability to read has been deteriorating and he is physically more fatigued as of late. He has been asking the doctor about a prognosis and she finally gave it to him last Thursday. It realistically seems that he will have between 6-12 months left. We had held out hope that he would outperform the odds but it is a very aggressive form of cancer.
He just shared this timeframe with our immediate family which will likely spur many of them to come see us (once they have their vaccines). Ken just got his #1 Covid vax on 2/20 and his #2 is 3/9. If you are wanting to connect, you can leave a comment on this post. Know that the response from him will be some days but he appreciates your thoughts. We want to be mindful of Ken’s energy and time.
It’s been a lot to process but we’ve been living with this potential outcome for a while since we were aware of the statistics. The kids are in the loop and each have counselors too (as do we) and so I think we are doing the very best that we can in this circumstance. Everything from his illness to homeschooling to the household have been (mostly) manageable to this point and we hope it stays that way for as long as possible.
We have been approaching each day with gratitude and have been able to spend LARGE amounts of family time together. We appreciate all we have–access to quality medical care for Ken, the resources to sustain our lifestyle and the continued support from our family & community.
We will continue to celebrate the good, high-functioning days–as well the rough ones too.
Love,
Ken & Kali
From our recent trip to San Juan Island, Feb 16, 2021
Hi Ken. Hi Kali.
Thanks for the update.
Stay strong and try to enjoy every day.
Love to you all
🧡💫💙
Ken and Kali, I have been thinking of you often. Please share if I can help you with food or housework.
Thank you for the update. Praying for all of you. Ken, you have put up a tremendous fight and I know you will keep fighting. Love to all.
Greetings Ken and Kali. I am absolutely gutted by this news and simply don’t have the words to express how I feel for you guys. I have every intention of spending time with you, Ken, but don’t know when I’ll be able to get my vaccine. It’s so frustrating, as we were on our way to see you guys before the pandemic. At the least, I’d like to Zoom with you or something. We love you guys and send all the good feelings, love and energy we have your way.
Ken, Kali, Sidney, & Calvin:
Sending y’all huge hugs from the four of us. We’re here for you for anything and everything.
Love,
Kristina, Jeremia, Isabelle, & Kenzi
Ken, Kali, Sidney, and Calvin-
We love you all so much! We are here at a moments notice for you. Your whole family will continue to stay in our thoughts and prayers. Sending you all big virtual hugs and lots of love.
xoxo Suzanne, Sumeer, Asha, & Amaya
Dear Ken and Kali,
Thank you for the update. I am praying for you.
Hugs,
Akanksha
Dear Ken, Kali, Sidney, and Calvin,
Thank you for the update. I can’t imagine how difficult this is. I want to help however I can to relieve stress and boost spirits. You are showing us what it means to be living life to the fullest, and loving hard on each other…
Sending strength and love.
Dear Ken and Kali
Stay strong, we will continue thinking of you during these difficult times.
Each Sunday I say a prayer for you. I pray that you are surrounded and infused by the healing and love of the Great Power of the Universe as well constantly feel the embrace of all of us who love you.
My love, my thoughts and my virtual hugs to you Ken, Kali, Sidney and Calvin. Joe and I are here for you and if you need anything, please let me know. I want so badly to come to see you all – know you are loved and thought of every day. xxoo
Ken, we send you our love and prayers. We are thankful that your beautiful wife and children constantly surround you with love and care. We have many fond memories of you as a child and treasure the time we spent with you and Kali when we visited Seattle in 2005.
Ken and Kali –
This is devastating news. Words fall short in conveying how much you mean to us. I’m sure you know that there are so many people who care about you and want to support you however we can. We are here for you, in whatever way that is helpful.
Sending you all our love, hope and support. – Shannon and Sean
Ken Moore Damn It! Or is it Damn It Ken Moore? I forget 😄 Well I know ChewBottle works… that I KNOW you’ll remember 😆 Looking forward to chatting soon brother. Love you and your family and we think of you all often. Talk soon man … Love Billy aka 003
Ken, Kali, Sidney and Cal: You are, and always will be, a great family. I think of you often and will pray for your strength and happiness. Ken, I will never forget all the fun (and musical) things we did since meeting in SoCal back in the 1990s. Keep your head up always.
Hi Uncle Kenny,
I have followed your blog since it has started and I have held you in my heart and thoughts ever since. My husband has had business in Seattle the last couple years and I was going to visit last year… but obviously that couldn’t happen with Covid. I still have plans to come this year so I hope to see you 🙂
Dear Ken and Family
You are in our thoughts in these difficult time. Best wishes
Sending you much love and peace. We are here for you. Please let us know how we can help you.
Love, JoJo and Dan Guralnick
This news is so hard to hear, often truth is that way. Your family is so strong and have been handling all the challenges thrown your way the best you can. You are wise to recognize all the extra close family time you have gained in the recent year(s) and also wise to prepare for the uncertain future. We are sending as much love and thoughts of joy and happiness your way.
Warmly, the Jungbluths
Ken and Kali-
This news is not what we have prayed to hear. We are so sorry and this honestly sucks. Anything we can do to help, we will. Love you.
Cynthia
Ken and Kali,
You’ve been on my mind a lot lately. I remember how excited we were when we were expecting our first children. It was a really special time in my life and I was thankful to share it with you both. I don’t have the right words, but I wanted to you to know that I’m here for you – both of you.
Aideen
Ken – I just want to take a moment and say how much I have learned from you and how those lessons early in my adult life continue to teach me. Whether it was watching you manipulate MS Paint to make something look real in the world, the joy of creating interfaces that customers actually love, or the love and joy I saw in you when first found Kali. All the way through to our visits when you were down in Mountain View, to following your creative music and visual hobbies, to now and how you have handled this latest challenge. Ken and Kali – Sending you love, strength, and hopes you will live every day to the fullest you can, as you always have.
Hi Ken,
I have been thinking a lot about you recently. I am so sorry about the latest update. Irene and I are now back in the Seattle area and if it all possible, would love to just come by to see you sometime if you’re up for it.
Sending all of our love and support to you, Kali and the kids!
Dear Ken,
Sending you my prayers and thoughts, I might have never sent you a comment before, but I was always waiting for updates on you and checking here every time.
Prayers and love for all the family, stay strong.
Dear Ken and Family,
I am sad to read this, and I hope you can make the most of your time with your family and close friends in such hard times.
Dear Ken and Kali,
I can’t put words to how hard this is to hear. I would very much like to spend some time with Ken, and Danielle and I would love to spend time with all of you together if at all possible. Let us know how we can work these in.
Love from all of us-
The Kiskers
Hi, Ken and family,
Happy spring! Thanks for sharing these updates. I’ve been thinking about you, and how hard it must be to go through this. Please let us know how we could help with meals or any other support you might need now. Wishing you all the best,
Michael
I’m just seeing this update. I am so sorry to hear this recent news about Ken. I am sending you all hugs, continued strength, support and love. Hoping the coming days are filled with comfort
and lots more opportunities for family and friend time. Love, Liza and Justin Anderson
Dear Ken & Kali
I’m so sorry to hear this news.
I worked with Ken for a short time but he was such a great person to be around and work with. Stay strong during this tough time, I’ll be praying for you and your family.