Last week we had a super Disneyland trip! Despite taking oral chemo during the same week my energy level remained high (unlike the prior chemo cycle in cold, rainy Seattle) and the vacation was a real delight.
As for determining which medical treatment I’ll proceed with, that part was challenging and took more research, conversations and visits with medical teams across the country. Kali invested a lot of time and energy leading the effort, which took a serious toll on her own energy and peace in addition to planning a robust Disney trip, but ultimately we came to a good conclusion: I’m holding off on a second round of brain surgery for now, and my next MRI in two weeks will shed more light on what’s happening in there and how best to move forward. The story of how we got there is long and detailed, I’ll spare you the several paragraphs but can’t say enough how many hugs and thanks Kali deserves here.
This past week my life has mellowed out in good ways: ramping back up into work at Google, getting a run or skateboarding session here and there, helping the kids with school, hanging out with Kali, friends and family… good times for sure.